Online Survey: Experiences of Informing People about a Facial Difference

What is the study about?

Do you have a facial difference of any kind (for example, cleft lip/palate, burns, a scar, Hemifacial microsomia, Moebius syndrome, facial paralysis, Treacher Collins syndrome, or a skin condition)? We want to learn about the experiences of people with facial differences in deciding whether or not to inform other people about their difference and what kind of outcomes this leads to. Last year, we interviewed adults with facial differences about their experiences. Now, we are conducting an online survey to learn how our initial findings fit with the larger facial difference community.

What would you do as a study participant?

  • 20 minute online surveyDSIL members working
  • Enter to win one of 10 $15/£10 Amazon gift cards

Who is eligible to participate?

  • Have any kind of facial difference (that can be covered up or not)
  • 18 years or over
  • Communicate in English

What will we do with study findings?

The long-term goal of this project is to develop recommendations for people with facial differences and their families about discussing facial differences with others.

Who is the Principal Investigator?

Kathleen Bogart, PhD is an Associate Professor of Psychology at Oregon State University. She studies stigma in facial differences and disabilities, has a facial difference herself, and is an advocate. To learn more or to participate, contact her at