Share Your Rare!




The Disability and Social Interaction Lab is researching ways to support to people with rare disorders to reduce the stigma of feeling alone. Based on our work, the lab runs an outreach campaign on Rare Disease Day (the last day in February).

How to help raise awareness:

Take a selfie with a sign saying "I'm rare because..." and share on social media #ShareYourRare #RareDiseaseDay. Use our template, or write your own. Post on social media with the hashtags #ShareYourRare and #RareDiseaseDay or email them to to be posted. Challenge a friend to do the same by tagging them.